Interesting article in the Mirror on dystonia, and what struck me was how sensible and accurate it was, compared to the ugly scare stories I have seen in the Mirror on the same subject. I think the folks at the UK Dystonia Society may have something to do with that.
Also a quote about the specialise he went to see:
“I went to see a specialist, a neurologist, who was about 7ft tall, very expensively dressed and was very upper class.”
Sounds oddly like my old mate, Prof Quinn. Anyway, from this article:
“Dystonia is a neurological disorder which causes involuntary muscle contractions leading to abnormal movements or postures. It is not fatal and can be managed through drugs or sometimes surgery.
Short and sweet.
I have had dystonia since ‘97, cervical, and I was well into the stage of crippling pain (though I somehow worked everyday). It was the downfall of my marriage, and several other set backs or speed bumps in the road of life, as I call it. Some were concrete walls. The bright light at the end of the tunnel for me was an Rx of Neurontin from the brightest of all lights, Dr. George Paulson at Ohio State Medical Center’s Clinic of Excellance.
I hope this information helps even one person, and I will feel I have done something in this world.
Prof Quinn has retired! I don’t think anyone would ever call him their ‘old mate’! Distinctly unfriendly and unhelpful. And to say that all dystonias can be managed by drugs is simply not true – I’m proof of that.
There is at least one other dystonic, apart from me, on ouch!, but s/he hasn’t said which kind s/he has.
I got on well with Prof Quinn, I wouldn’t describe him as particularly unfriendly or unhelpful. Arrogant and a bit of a snob maybe. I’m surprised he has retired though, I didn’t think he was old enough…